Caring for children who have severe neurological impairment

This guide provides information to help parents increase their knowledge and improve their caregiving skills. In "Caring for Children Who Have Severe Neurological Impairment, " Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent.